Links to Related Sites
ABCD-Americans for Better Care of the Dying
http://www.abcd-caring.org
A coalition of citizens and professionals dedicated to
social, professional, and policy reform aimed at improving
the care system for seriously ill patients and their
families.
American Academy
of Hospice and Palliative Medicine
http://www.aahpm.org/
An international organization of physicians dedicated to the
advancement of hospice and palliative medicine in the
management of the terminally ill.
American Academy of Pain Medicine
http://www.painmed.org
Provides information on quality care for patients suffering
from pain.
American Alliance of Cancer Pain
Initiatives
http://www.aacpi.wisc.edu/
The Cancer Pain Initiatives started 10 years ago and now in
various stages of development in all 50 states, have become
a significant force for change in the way cancer pain is
managed in the American health care system.
American Pain Society
http://www.ampainsoc.org
A multidisciplinary educational and scientific organization
serving people in pain by advancing research, education,
treatment, and professional practice.
Caring Connections -
a program of the National Hospice and Palliative
Care Organization (NHPCO)
http://www.caringinfo.org
A national
consumer engagement initiative to improve care at the
end of life. Caring Connections provides
free resources and information to help people make
decisions about end-of-life care and services before a
crisis, helps people connect with the resources they
need, when they need them, brings together community,
state and national partners working to improve
end-of-life care and spearheads a national consumer
engagement campaign called
It's About How You LIVE.
Center to Improve Care of the Dying
http://www.gwu.edu/~cicd
The Center to Improve Care of the Dying is a unique,
interdisciplinary team of committed individuals engaged in
research, public advocacy, and education activities to
improve the care of the dying and their families.
Department of Pain and Palliative Medicine-Beth Israel
Hospital (NYC)
http://www.stoppain.org
Information on pain and symptom management.
End-of-Life Nursing Education Consortium (ELNEC)
http://www.aacn.nche.edu/elnec
Offers training and resources for nurses seeking education
and information on end-of-life care.
End-of-Life Physician Education Resource Center (EPERC)
http://www.eperc.mcw.edu
Educational materials and information about end-of-life
issues.
Family Caregiver Alliance
http://www.caregiver.org/
Free online help for caregivers featuring support groups, a
resource guide, and more for families coping with
Alzheimer’s disease, stroke, Parkinson’s, ALS and other
disorders.
Growth House, Inc.
http://www.growthhouse.org/
An international gateway to resources about life-threatening
illnesses and end-of-life issues, including hospice and home
care, palliative care, pain management, death with dignity
and bereavement.
Hospice and Palliative Care Association of New York State
http://www.hpcanys.org
Membership organization representing hospice and palliative
care programs in NYS. Services include advocacy,
education, research, public engagement, database development
and technical assistance.
Legal Guide for the Seriously IllLegal Guide for the
Seriously Ill
http://www.caringinfo.org/UserFiles/File/PDFs/AdvanceCarePlanningLegalIssues
/Legal_Guide_for_SeriouslyIll.pdf
The Legal Guide for
the Seriously Ill, a project of the Commission on Law and
Aging of the American Bar Association and commissioned by
NHPCO, was designed for both the critically ill and their
caregivers to help get legal affairs in order.
National Guidelines Clearinghouse
http://www.guideline.gov
Evidence-based guidelines and related abstracts, summaries
and comparison materials for health care professionals,
sponsored by the Agency for Healthcare Research and Quality.
National Hospice and Palliative Care Organization
http://www.nhpco.org
Membership organization representing hospice and palliative
care programs and professionals committed to improving
end-of-life care and expanding access to hospice care.
New York
Organ Donor Network
www.donatelifeny.org
Palliative
Drugs.Com
http://www.palliativedrugs.com
Provides essential, comprehensive and
independent information for health professionals about the
use of drugs in palliative care.
The Education for Physicians on End-of-Life Care (EPEC)
Project
http://www.epec.net
Designed to educate physicians on the essential clinical
competencies in end-of-life care.
World Health Organization
http://www.who.int
Information sources, health topics, reports, governance.
 |
